What is Epidermolysis Bullosa? EB is a skin disorder that causes fragile skin which blisters in response to heat, friction, rubbing, scratching or minor injury. There are many forms of EB, which means that while all people with EB share certain struggles and pain, their condition will affect them in very different ways. #EpidermolysisBullosa #EBawareness #stopEB #Inspiration http://ebinfoworld.com http://butterflychildamothersjourney.com
#celEBrateLIFE Pull Cord Bracelet | Epidermolysis Bullosa Medical Research Foundation
#celEBrateLIFE Pull Cord Bracelet | Epidermolysis Bullosa Medical Research Foundation - Charity By Design - Collections
I designed this butterfly to raise awareness for the disease EB – Epidermolysis Bullosa. / Children who have this disease are often called butterfly children because their skin is literally as fragile as a butterfly. They live in pain EACH AND EVERY MOMENT of their LIFE! / The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live witho...
Tia has epidermolysis bullosa - known as 'butterfly skin' https://tmbw.news/tia-has-epidermolysis-bullosa-known-as-butterfly-skin Four-year-old Tia Foster-Price has a condition called epidermolysis bullosa (EB).It means her mum Anne Marie has to treat her skin and pop her blisters every day - and it stops her running around with her friends.Anne Marie says she thinks: "Is she going to die this year? Is she going to live?"But she hopes Tia might benefit from a pioneering genetic treatment…
I advocate because I <3 someone with Epidermolysis Bullosa #EBawareness ebinfoworld.com
Kaley Couco for Epidermolysis Bullosa Awareness #ebawareness ebinfoworld.com