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Hope road trip!

Lisa in Tennessee has hope.

She is eight feet tall, and I love this poster!   IBC edu to go!

She is eight feet tall, and I love this poster! IBC edu to go!

Chloe was copying me as I was crossing my  feet. We always have a grand time together.  Every day is a good day.

Chloe was copying me as I was crossing my feet. We always have a grand time together.

My daughter Elizabeth, helping Cindy educate the community about IBC.

My daughter Elizabeth, helping Cindy educate the community about IBC.

We had a very successful meeting with Dr Beth Overmeyor of Dana Farber hospital and staff along with IBC Network volunteers. We are planning how we can support research in Boston. Very good day

We had a very successful meeting with Dr Beth Overmeyor of Dana Farber hospital and staff along with IBC Network volunteers.

Jenee is a ten year survivor of IBC.  Still NED.  She was the first I had read about.  Her story gave me hope.  I clung to that hope in treatment.

Jenee is a ten year survivor of IBC. Still NED. I clung to that hope in treatment.

Morgan Welch, her story inspired.

Back then there were few sources of information about IBC, and there was little research happening for this disease.

When I realized I wanted to do something serious about IBC, Lori Grennan asked me to tell her story.  It mattered.  It mattered so much we were able to fund two research projects in under 14 months.  We will always have a debt to Lori.  We will remember.  Hope Always.

The IBC Network Foundation's mission is to fund research for Inflammatory Breast Cancer, to provide an avenue education and offer college scholarships.

This Texas girl went to Alaska, and ended up on TV, with my friend Jeff, to talk about IBC.

This Texas girl went to Alaska, and ended up on TV, with my friend Jeff, to talk about IBC.

The IBCnetwork.org

The IBCnetwork.org

Working with epirubicin today in the lab. This is one of the standard drugs in the neoadjuvant cocktail of chemotherapies for IBC. It is in the same family as doxorubicin (often called "red devil" by pts for obvious reasons!) so you will usually get 1 or the other. How does it work? It has several mechanisms, including generating DNA and oxidative damage which kill cells at a certain threshold.Unfortunately it is usually the drug which causes hair loss, neutropenia & is pretty nauseating :(

Working with epirubicin today in the lab. This is one of the standard drugs in the neoadjuvant cocktail of chemotherapies for IBC. It is in the same family as doxorubicin (often called "red devil" by pts for obvious reasons!) so you will usually get 1 or the other. How does it work? It has several mechanisms, including generating DNA and oxidative damage which kill cells at a certain threshold.Unfortunately it is usually the drug which causes hair loss, neutropenia & is pretty nauseating :(

Inflammatory breast cancer (IBC) is a rare, aggressive type of breast cancer that compromises 1-5% of all newly diagnosed breast cancers. Physician recognition and early diagnosis of IBC are critical because the overall survival rate is lower for it than for other breast cancers (50%).

Inflammatory breast cancer (IBC) is a rare, aggressive type of breast cancer that compromises 1-5% of all newly diagnosed breast cancers. Physician recognition and early diagnosis of IBC are critical because the overall survival rate is lower for it than for other breast cancers (50%).

Some IBC sisters sharing info at a run in VA.  #nolumpstillcancer  www.theibcnetwork.org

Some IBC sisters sharing info at a run in VA. #nolumpstillcancer www.theibcnetwork.org

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