Rare Disease Event
Chris Verity, Anne Marie Winstone and Lesley Stellitano, Progressive Intellectual Neurological Deterioration research group.
Miriam Evans, Niemann-Pick Disease Group
Hilary Cass, RCPCH President speaking on rare disease
Alastair Kent introducing Earl Howe
AKent Speech 2
Listening to speech
Chris Verity speech on rare disease surveillance
Earl Howe speech
Earl Howe with Alex and mum
Earl Howe with Su Brimble
CLIMB: National Centre for Metabolic Diseases
Hilary Cass, RCPCH President speaking on rare disease.
Earl Howe Speech