RCPCH March 2014

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Rare Disease Event

Rare Disease Event

Chris Verity, Anne Marie Winstone and Lesley Stellitano, Progressive Intellectual Neurological Deterioration research group.

Chris Verity, Anne Marie Winstone and Lesley Stellitano, Progressive Intellectual Neurological Deterioration research group.

Orphanet Delegates

Orphanet Delegates

Miriam Evans, Niemann-Pick Disease Group

Miriam Evans, Niemann-Pick Disease Group

Hilary Cass, RCPCH President speaking on rare disease

Hilary Cass, RCPCH President speaking on rare disease

Alastair Kent introducing Earl Howe

Alastair Kent introducing Earl Howe

AKent Speech 2

AKent Speech 2

Listening to speech

Listening to speech

Chris Verity speech on rare disease surveillance

Chris Verity speech on rare disease surveillance

Earl Howe speech

Earl Howe speech


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